Alzheimer Disease Community Resources
Neuroscience

Alzheimer Disease Community Resources


From an NIH press release:

Easy-to-Read Booklets on Alzheimer’s Disease, Memory Loss Offered by NIA

The National Institute on Aging (NIA), a component of the National Institutes of Health, now offers two free booklets designed to help people with limited literacy skills learn about Alzheimer’s disease (AD) and memory loss. In these easy-to-read booklets, the medical and technical language has been replaced by plain language, stories, photographs, and other features to help readers understand the content.

“Our goal was to produce strong, clear materials to make information about AD and memory loss accessible to everyone, including those with limited literacy skills,” says Richard J. Hodes, M.D., director of the NIA. “These booklets also are excellent starting points for anyone who needs basic information about AD and memory problems, regardless of reading capability.” They are valuable additions to the comprehensive collection of health education materials available from NIA’s Alzheimer’s Disease Education and Referral (ADEAR) Center, adds Hodes.

In addition to local field testing, education experts at NIA-funded Alzheimer’s Disease Centers arranged a series of interviews with caregivers and people with AD to gather feedback about the booklets. “We carefully tested each booklet for overall appeal, format, graphic elements, comprehension, cultural appropriateness, and “self-efficacy” (a measure of understanding the importance of taking action if signs of AD or serious memory loss are seen), says Patricia D. Lynch, M.S., project officer of the ADEAR Center. “The testing yielded excellent feedback that we used to refine the booklets,” explains Wendy Mettger, M.A., the plain language expert who developed the booklets.

[snip]

To order copies or for more information about these booklets, visit the ADEAR Center Web site at www.alzheimers.nia.nih.gov, or call 1-800-438-4380. Bulk orders are welcome.

[ ... Read the full press release ... ]

[NOTE: pdf versions of the two booklets are available at the ADEAR link above.]

-
Anthony H. Risser | neuroscience | neuropsychology | brain




- Alzheimer's Disease: Genomic Data
Press release from the NIH: NIH deposits first batch of genomic data for Alzheimer’s disease Researchers gain rapid access to first set of raw human genome sequence 02 December 2013 [snip] "Researchers can now freely access the first batch of genome...

- The Guardian/observer Memory Week
The Guardian/Observer Memory Week Read the article "The free 'Making the Most of your Memory' 24-page booklets, are available with the Guardian this Saturday 14 January and the Observer on Sunday 15 January."...

- Caregivers Of Persons With Dementia
From an NIH press release: Novel Program Enhances Dementia Caregivers’ Quality of Life EMBARGOED FOR RELEASE Monday, November 20, 2006 5:00 p.m. ET NIA Media Contacts: Susan Farrer or Linda Joy 301-496-1752 [email protected] NINR Media Contact:...

- Neuropsychology Assessment Of Dementia: Early Detection
From an American Psychological Association (APA) press release on 25 September 2005:PSYCHOLOGISTS FIND MORE SENSITIVE TESTS FOR PREDICTING ALZHEIMER'S AS WELL AS SUBTLE CHANGES IN COGNITION Implicit-memory tests are stronger predictors than the common...

- Imaging Alzheimer Disease
From a press release by the National Institute on Aging:National Institute on Aging, Industry Launch Partnership, 60 Million Dollar Alzheimer’s Disease Neuroimaging Initiative    Wednesday, October 13, 2004, 10 a.m. ET Contact:   Vicky Cahan...



Neuroscience








.